Wednesday, May 18, 2016

After Chemo--What Next?


My 10th and last chemo was Thursday April 14.  As I write this it is four and a half weeks since then, the longest I have been without chemo since October.  How do I feel?  Tired.  I have been surprised that the tiredness has lingered longer than I expected. Usually during the course of chemo I felt charged up during the third week, able and willing to walk, work out, rock climb, meet people.  But now I am not so charged up.  I only began to work out on Monday the 9th, have not returned to rock climbing, tried biking only to decide I need to wait on that experience.  I also find—and this is troubling—that I am just as happy to not meet people. 

I find I have a drained feeling, not always, but often enough.  I will wait to do little errands if I decided I have done enough for today, even though the errand might only take 15 minutes. I don’t know what to make of this attitude.  I had it right after chemo but then the chemo itself was the obvious cause. Of course in the background sometimes is a little voice whispering “Well, we are shutting down around here. It won’t be long now.” I don’t like that. I don’t want to fall prey to that attitude. I can’t sit around waiting to die.

I can’t sit around period. I have to find ways to combat this sluggishness. Reading helps.  I have read all the Fredrik Backman books—I can highly recommend them. I also read The Three Musketeers, a novel I have never read (it has sort of a grisly ending), and am now working on 1493, which deals with the world changing events that followed Columbus’ landing in the new world in 1492. The course I am most committed to is conversational German where I have worked through over several years all 5 30-lesson units of the Pimsleur courses. I am slowly getting better because I have heard enough now that some of the words really do stick with me.

The question that arises, though, is what SHOULD I be doing? Chemo for prostate cancer is not curative, it is palliative.  Unless some kind of miracle occurs, I have maybe two years to live, if that. Mary and I have decided that we should travel. I wonder whether I should write more, about my life, my thoughts and values, my experiences as a teacher. Probably I should.  But getting to the point where I do that is a major commitment. Completed writing occurs because you start and stick to it regularly. An hour a day, five hours a day, whatever, just regularly. I should probably cull my large photo collection rather than leave that to someone else. On the other hand most of those tasks require me to sit at my computer a lot, and I am not sure I want to do that. I have many photos of my family on the wall behind my computer so I see them all the time and love looking at them, but what if we moved into the cities?  Could we travel more?  Travel requires strenuous effort, lots of walking. Right now I don’t feel like doing that and am not sure I could do that. Ugh.

I hope to return to this topic of what to do in upcoming posts. How active should I be? I have to say that sitting and watching the astounding bird activity in our yard is a very pleasant way to spend time.  Maybe more of that? Maybe stop worrying and do what is in front of me?  If I can’t or don’t feel like getting around, should I just listen to myself and focus on what is here and now?